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Entries in Lupus NY (3)

Monday
Jan072013

Video: "Climbing Higher: Shanelle’s Lupus Story"

Lupus is a chronic autoimmune disease where the body’s immune system becomes overactive and attacks the body itself. Singer, poet and activist Shanelle Gabriel was diagnosed with Lupus in 2004. She joined the American College of Rheumatology‘s Simple Tasks campaign to educate others on rheumatic diseases, such as Lupus. Shanelle tells her own story of embracing the obstacles that were thrown at her, so she could use them as stepping stones to climb higher to her dreams. She is inspiring others to value their health and their life.

Saturday
Oct132012

Cool Events for My Friends with Lupus (Education Sessions, Free Yoga and Aquatic Tai Chi Classes, and Nutrition Certificate Program)

 

The SLE Lupus Foundation's New York City Hospital Tour 2012

Annual Lupus Patient Education Series

  • October 15 at Jacobi Medical Center in the Bronx, Lupus and the Kidneys with Julie Schwartzman-Morris, MD & Anjali Acharya
  • October 25 at Staten Island University Hospital in Staten Island, Lupus and the Heart with Mary Ann Lee, MD
  • November 1 at Columbia University Medical Center in Manhattan, Lupus: What It Is and Who Gets It with Laura Geraldino-Pardilla, MD & Robert Winchester, MD
  • Check back for more information about our Queens program with Richard Furie, MD

All programs are from 6pm to 8pm.

For more information, or to reserve your spot, please call 212-685-4118 or email lupus@lupusny.org

 

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LUPUS TAI CHI AQUATICS

AN 11-WEEK AQUATICS EXERCISE PROGRAM


Mondays (for 11 weeks)


October 8th-December 17th, 2012


Time: 1:30pm to 2:30pm


Location: 161 Ashland Place (Bet. Dekalb and Willoughby Avenues), Lower Level

Participants are required to commit to all classes and MUST HAVE LUPUS! 

To register please call 718-928-2002 or email BklynLupusCoop@LupusNY.org


Sponsored by Long Island University

 

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NUTRITION CLASS!

Starting on Tuesday, October 16th at 10am, we will begin our 8-10 week nutrition class. A health educator for Cornell University Cooperative Extension facilitates these workshops. They are a lot of fun and very informative, and include live food demonstrations and (light) exercise demonstrations, both of which you can participate in. If you complete the entire program, you will receive a certificate of completion that you can list on your resume. See the flier below!
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Join The Lupus Cooperative of NYC for

FREE YOGA CLASSES

 

TWICE A WEEK!

Tuesdays 6pm to 7pm

Thursdays 12pm to 1pm

FIRST CLASS IS OCTOBER 4TH @ 12pm


Location:  Long Island University

Room HS 322

Health Science Building

The entrance is on Dekalb Avenue and Hudson Avenue


*Please dress in comfortable clothing. Mats will be provided for those who don’t have one*


To RSVP, please call (718) 928-2002 or (646) 369-2007

 

 

Monday
Mar192012

13.1 has new meaning for me... Running the 2012 NYC Half Maratho

I earned this tattoo....



I know, I know, it's a temporary one but I earned the right to wear it. On Sunday, March 19th, 2012, I ran 13.1 miles in the NYC Half Marathon. I did this to raise money for the SLE Lupus Foundation and also to show that even though I'm living with Lupus, I can still accomplish an amazing physical goal.

My day started at 5:30am. Even though I prepared the night before by putting out all my clothes and carb loading at a pasta party my running group Black Girls Run threw, I still felt like I was scrambling. This endeavor had me more nervous than I've ever been, even at a show. "What could go wrong? Just finish. That's all that matters." I encouraged myself and checked my twitter & FB for encouragement from others.


Once the race started, I felt like an ant in an ant farm; there were so many people scattering in the same direction. My biggest fear in this race was the first 6 miles in Central Park. I truly felt unprepared for the plethora of random stupid hills all over the park. Due to my busy schedule over the last few weeks, I missed official Team Life Without Lupus trainings in the park, and man, by the time I got to the 7th Ave exit, my right foot was pissed at me.

People asked me if I stopped at all. Yes, a few times. To replenish at the gatorade/water stations, to re-tie my laces, once to use the port-a-johns (you don't wanna know why), and to stretch out random stiff parts of my body. At one point in time, my foot, lower back, left hip, and chest were all on fire. As I watched a one-legged man with a sporty artificial limb breeze past me (I was one part amazed, two parts embarassed at my slow pace), I sucked it up and focused on the end.


As I made my way down 7th Ave to 42nd Street to the West Side Highway, I was proud to be one of the people being cheered on. It was great seeing my BGR sisters waving banners along the route as well as the random folk giving high-fives as you passed them by. One sign stood out:

"Run like you stole something."

If that was the case, I'd have gotten caught. By the time I got to the 20s on the West Side Highway, I swore I was gonna need to be carried off course if I ran at the pace everyone else was. So I slowed down to a simple lil jog. Besides, everyone around me was running FOR a cause. Darnit, I AM the cause. No killing myself.

I was a lil jealous of the people who's families had cardboard signs with runner's names on it, but I remembered, I'm not running for anyone other than myself and people like me, many of which couldn't be there.

The last mile was gruesome. The final incline to get through the tunnel near the Battery Tunnel to the highway exit for South Street Seaport was murderous on my foot but I got through it, and jogged as best as I could to get to Water Street where the race ended. I crossed the finish line and almost laid out right In the street. My friend Gigi from college was there waiting for me. They gave all participants a medal, water, pretzels, an apple and a foil sheet to wrap around our bodies to keep us warm.

At the end of the day, I am able to say that as a person with Lupus, I reached my goal of running 13.1 miles to show that at the end of the day, LUPUS CAN'T HOLD ME! I did this while my friend Olympia is in the hospital, Adrienne fights every day for the energy to just get through work, Judith works to find new medication while creating a non-profit to help people deal with Lupus in Ghana, and while many others battle the same battle I fight daily with health insurance companies, medications, rest, complications, and more. I hope this run made someone who is battling Lupus smile. I did it for you!